Intractable Rare Dis Res. 2012;1(3):138. (DOI: 10.5582/irdr.2012.v1.3.138)
DEBRA International: International cooperation to improve healthcare access for patients with epidermolysis bullosa.
Dart J
SUMMARY
KEYWORDS: Epidermolysis bullosa (EB), patient advocacy organisation, clinical network, therapy development
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